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Living with and after cancer
Late Effects of pelvic radiotherapy in women and men

Cancer Survivorshippdf published in Nursing
Times (March 2009) by Macmillan

Macmillan information centres in the UK which
you can find by entering your UK postcode

Cured-but at what costYou will need Adobe Reder to read this document Report on long term consequences of many cancers and its treatment - July 2013

Many excellent booklets are available,
mostly free, on searching their website.

NACC
NACC article on problems after pelvic radiotherapy
article published in 2006 includes input from UK
medics, medical charities and patients, aims to
improve awareness of problems after radiotherapy

Crohn's and Colitis has some similarities with
people who have bowel problems after
radiotherapy, so their website contains
lots
of tips, including information on Radar Keys
Opens in a new window
Contains lots of information about aspects of
cancer survivorship,
consequences of treatment,
work, finances, rehabilitation, self-management,
children and young people, and more.


The National Cancer Survivorship Initiative (NCSI),
created by the Cancer Reform Strategy (2007),
published its vision statement in 2010
CancerHelp UK information

There is a wealth of information to navigate to
on the Cancer Research UK site using the
menus
from any link.


Maggie's - People with cancer need places like these
Centres to actually visit for support and information
in all aspects of cancer, whether new, or a survivor.

Maggie's Online Centre is an information gateway
to for yourself or maybe someone you know
who you are supporting at any stage of cancer.

  • Pelvic Radiation Disease Association (PRDA) is quite a relatively new support group, initially formed from an initial meeting of patients of the Royal Marsden in London in 2008.
    As of 2010 it became more structured, and in 2012 it became a registered charity, making connections with other cancer charities and organisations.
  • Also support and information for patients who have late effects following pelvic radiotherapy, at the Christie Hospital in Manchester.
  • RAGE (Radiotherapy Action Group Exposure) lobbied UK media, Parliament and medical authorities in 1990's.
    Their actions concerned mainly damage after breast cancer.
  • An article on Radiation Enteritis for medical professionals, but might be useful. Links to other sources of information too.
 

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